New Study Quantifies the Impact of Caring for a Child with Rare Disease PFIC

Albireo Pharma announced the publication of a study that evaluated and quantified the impact that progressive familial intrahepatic cholestasis (PFIC) has on caregivers. Understanding this impact has been challenging due to the rare nature of PFIC.

As a rare, pediatric, genetic disease of cholestasis, PFIC is characterized by inadequate bile secretion and often requires liver transplantation….

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News Source: https://www.hcplive.com/view/new-study-quantifies-impact-caring-child-rare-disease-pfic

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